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- Shift.ms: Your MS Community Vs. icompanion
Shift.ms: Your MS Community vs icompanion Usage & Stats
The multiple sclerosis community, from diagnosis. Connect, get answers, make decisions.
Shift.ms is a digital community that supports people with MS (MSers) from diagnosis by connecting them with others who get it, empowering MSers to make proactive decisions inspired by the lived experience of others.
We’re an independent charity and our app is free.
- 60,000+ members worldwide
- Connect with people who understand what you’re going through and build your support network
- Learn how to adapt to your diagnosis and better manage your health
- Find answers to all your MS questions
- Get honest advice from the people who’ve been where you are
- Read, listen, watch the stories of other MSers
Be part of the Shift.ms community, take control of your MS and get on with living life.
Ever wondered what a social network for people with multiple sclerosis would look like? Shift.ms is it, with the added benefit of safeguards to ensure our free community is a positive space, dedicated to supporting people with, or who’ve been affected by, MS.
"It's an app that carries proper authority, not a wild west. It's a trusted space where you can decide how much interaction you want. Whether you want to fully engage or just gather your thoughts, it's up to you." - Gemma, Shift.ms member
BY MSERS, FOR MSERS
- Shift.ms was started in 2009 by our CEO George Pepper, who was diagnosed with multiple sclerosis at age 22
- George co-founded Shift.ms to fill an urgent lack of support for younger people with MS
- Shift.ms remains the only UK MS charity that has the voice of people with MS at every level of the organisation
STORIES
- Feel inspired by the lived experience of MSers
- Watch fresh video content dropping every week
- Participate in polls and see the opinions of other MSers
- Personalise your profile
- Notifications straight to your phone
- Direct messaging to other community members
RECEIVE SUPPORT. GIVE SUPPORT
- Ask the community anything on the live feed
- Treatment choices and side effects
- Symptom flare-ups
- Mental health concerns
- Practical support ie. income benefits, workplace rights, managing symptoms
- Lifestyle recommendations ie. stopping smoking, increasing exercise/movement
- Reply to conversation threads with your own advice and experience
TAKE CONTROL, FROM DIAGNOSIS
- Newly diagnosed
- Been living with MS for a while
- Experiencing new challenges
- Make proactive choices that benefit your health in the long term
- Get support to help manage the uncertainty ahead
CONNECT WITH A BUDDY
- Connect 1:1 with an experienced MSer through our Buddy Network
- Free service to help MSers adapt to diagnosis
- Find personalised support based on location, age, gender, MS type, treatment choices
- Emotional and wellbeing support
- Coaching to help make early proactive decisions
"Having a Buddy is like having a best friend that identifies with you. [My buddy] helped me at a time when I really needed the support and I feel like I'm a lot stronger now." - Sahdia, Shift.ms member
FIND ANSWERS
- 24/7 access and support
- Ask questions; get honest answers
- “How bad were the treatment side effects?”
- “Top tips on managing fatigue?”
- “What is an MRI really like?”
WE’VE WORKED WITH…
- Thought leaders within the UK’s National Health Service:
- UCLH NHS - National Hospital of Neurology
- Kings NHS
- Barts NHS
- Leeds Teaching Hospitals
Trusted organisations to improve the lives of MSers:
- Transforming MS for All
- MS Brain Health
- Neurology Academy
“Shift.ms has been a great source of support for my patients. The peer to peer support they offer has been invaluable to my patients when living with the challenges of MS.” Julie Taylor, Specialist MS Nurse
REGISTERED CHARITY NUMBER: 1117194 (England and Wales)
REGISTERED COMPANY: 06000961
REGISTERED ADDRESS:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom
- Apple App Store
- Free
- Health & Fitness
Store Rank
- -
icompanion is a free (no in-app purchases, no advertisement) app and webplatform (icompanion.ms) that helps you with the home monitoring of your condition. In between your doctor’s visit, a lot of information is lost: how you feel, which symptoms you experience, how strong these are, how your disability, fatigue and cognition are changing, etc. The app is currently available in English, German, French, Dutch, Italian and Spanish.
For all of this, you’ve got a companion in me! Unlike most of the other health apps, icompanion is a registered medical device. Hence, the information you monitor with icompanion can be used by your doctor to make decisions on your health. If you log-in at icompanion.ms with the same account information, you can share your icompanion information with your doctor. This can lead to more productive conversations and there is more information at hand for your doctor on how you’ve been doing.
icompanion is very easy to use, yet full of relevant information for you. In only a few minutes a day, you will have an overview of:
- Your daily mood
- Any notes you wish to add
- All your treatments, therapies, etc
- The symptoms you’re experiencing over time
- The severity of these symptoms
In addition, icompanion contains clinical tests that have been developed by the largest academic centers and that are used worldwide to monitor Multiple Sclerosis. These tests evaluate:
- Your level of disability, through the patient reported ‘Expanded Disability Status Scale (EDSS)’
- Your cognitive abilities, through the neuro quality of life (neuro-qol) questionnaire on cognition
- Your level of fatigue, through the neuro quality of life (neuro-qol) questionnaire on fatigue
Furthermore, icompanion allows you to upload your MRI scans to the webplatform (icompanion.ms). In this way, you can easily store all your medical scans in one secure and central space. You can scroll through your own brain scan in several directions and learn about what MRI can show (and what it doesn’t).
icompanion also includes a knowledge center, with relevant information that is explained. All of this together will help you to prepare for your doctor’s visit.
Finally, icompanion uses Apple Healthkit to collect daily steps and sleep data.
Take charge of your condition, monitor how you feel, track your health: let icompanion be your companion.
The icompanion team wants to learn your story and your ideas! Share them via support@icompanion.com.
- Apple App Store
- Free
- Medical
Store Rank
- -
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Shift.ms: Your MS Community VS.
icompanion
December 26, 2024