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RareGuru: Rare Diseases vs Chronically Simple Usage & Stats
If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru.
RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive.
Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process.
Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers.
Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision.
Don’t let your disease isolate you from the world. Connect and learn together with RareGuru.
RareGuru Features:
Connect, Share & Network
- Create a private or public profile sharing what information you’re comfortable with.
- RareGuru matches you with other users who share a similar diagnosis or symptoms.
- Filter your matches based on location, age, gender, and user type.
- Message through private or group chats.
- Safe and secure social networking.
Symptom Tracker
- Track symptoms and take notes to evaluate your condition.
- Export data trends for sharing with doctors and specialists
Rare Disease and Chronic Illness Database
- RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms.
- The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD).
- Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity.
.Global Disease map
- Search the global disease map to see where certain diseases are more or less rare.
- Find out how many RareGuru users share your diagnosis in any location.
Rare Charities
- RareGuru spotlights organizations serving the rare disease community.
- Users can select their favorite rare charities during onboarding.
RareGuru helps connect and support those experiencing rare diseases. Download today and join us.
- Apple App Store
- Free
- Medical
Store Rank
- -
The healthcare app improves how patients and caregivers manage medical records and daily tasks. Users begin by inputting all of their existing healthcare information into the app. Then It becomes an instant partner for your healthcare journey.
From the app, you can share details with the entire patient care team in real-time, giving them peace of mind even from afar.
You will never show up to a specialist appointment without all of your information again.
It’s simple. The app was designed by patients and caregivers to ensure user-friendly capabilities.
It’s secure. Security is our priority. You will have peace of mind knowing all your medical information is stored safely.
It’s smart. All of your healthcare details are now in one place.
See your day at a glance, so you don’t risk missing anything important or dig deeper into past medical records and healthcare providers to share with a new specialist. Lose the binders, Chronically Simple has the power to track all of the information that relates to living with a chronic illness.
Designed by patients and caregivers, for patients and caregivers. Chronically Simple is a user-driven solution.
Chronically Simple is an application with optional monthly and annual auto renewable subscriptions that provide access to Premium features. You will be charged to your iTunes account for the listed amount at confirmation of purchase. You can manage your subscription and turn off auto-renewal by going to your Account Settings after purchase. By purchasing a Premium subscription, you gain access to features such as: Monthly expenses tracking, additional symptoms in the Symptom Tracker, and connecting the Apple Health app to view more of your tracked health data in one place. Data from the Health app can be viewed alongside tracked symptom entries in the Symptom Tracker for insights into trends over time.
We Are Patients Too
Kristy Dickinson, the Founder of the Chronically Simple, once had full control over her life: running her own business, volunteering at her kids’ school, and doing life right.
When she was diagnosed with Ehlers-Danlos Syndrome at 37, her life changed in an instant. She created Chronically simple to be the resource she needs to manage her healthcare, and with the intention to help others do the same.
We Are Caregivers Too
Brenda Agnew’s son Maclain was diagnosed with Cerebral Palsy and profound hearing loss. When Kristy sat down with Brenda to share her idea for a healthcare app, Brenda had seven binders she was using to manage Maclain’s care.
She can use Chronically Simple to manage her son’s healthcare journey, meaning she will no longer need to carry binders around to manage daily tasks like, physiotherapy appointments or tracking prescription refills.
We Are Advocates Too
When Julian’s mom was diagnosed with cancer, he was living in Nova Scotia. With an app like Chronically Simple, he can check in on all of the details of his mother’s care in a moment’s notice.
Chronically Simple makes dealing with a chronic illness less overwhelming. It stores all of the must-have information and daily tasks in one place. It’s accessible wherever you are and can be updated from anywhere.
Follow Chronically Simple on Facebook and Instagram to engage in a much bigger conversation about filling the gap for the 3 million Canadians living with a chronic illness.
- Apple App Store
- Free
- Medical
Store Rank
- -
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RareGuru: Rare Diseases VS.
Chronically Simple
December 11, 2024