LonghaulTracker 與 Trackuility - ME/CFS Pacing 使用情況與統計

Since the day that Olivia, our founder, first started to experience symptoms from what we later found was a tick bite, we have been on a journey of constant conversations with countless healthcare providers. Today everyone wants to better understand what symptoms she had, when they started, what it's like now, how severe are they, etc. We embarked on a journey of creating an app solely focused on logging and tracking Tick-borne Disease (TBD) symptoms to help all those effected by TBDs, but while we were creating the App, the world was hit with a global pandemic, and immediately the first thing everyone was focused on was "What are the Symptoms?". We then evolved our thinking and ended up coming to the conclusion that patients are suffering every day with various diseases, ranging from rare diseases to wide-spread diseases. The one thing they have in common is the journey of cataloging their symptoms over time in an effort to communicate those symptoms to their healthcare and caregivers ultimately to 'get better'. Olivia has been a 'longhauler' for years, as have many in the TBD space, which many have a hard time understanding. Now the term 'longhauler' has become more popular since the onset of the pandemic in 2020. Our hope with providing this free app is to assist everyone experiencing longhaul/chronic symptoms with their ongoing conversations with their healthcare providers and their personal support systems. We at the LivLyme Foundation, truly believe you when you say, these are the symptoms I'm experiencing and have experienced for months/years. Our belief is that through sharing and data that we can make your world, our world, a healthier and happier place.