Embleema 與 RareGuru: Rare Diseases 使用情況與統計

If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru. RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive. Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process. Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers. Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision. Don’t let your disease isolate you from the world. Connect and learn together with RareGuru. RareGuru Features: Connect, Share & Network - Create a private or public profile sharing what information you’re comfortable with. - RareGuru matches you with other users who share a similar diagnosis or symptoms. - Filter your matches based on location, age, gender, and user type. - Message through private or group chats. - Safe and secure social networking. Symptom Tracker - Track symptoms and take notes to evaluate your condition. - Export data trends for sharing with doctors and specialists Rare Disease and Chronic Illness Database - RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms. - The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD). - Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity. .Global Disease map - Search the global disease map to see where certain diseases are more or less rare. - Find out how many RareGuru users share your diagnosis in any location. Rare Charities - RareGuru spotlights organizations serving the rare disease community. - Users can select their favorite rare charities during onboarding. RareGuru helps connect and support those experiencing rare diseases. Download today and join us.