myPROBE 與 B SUPPORT 使用情況與統計
Complete the PROBE questionnaire on-the-go!
The patient reported outcome, burden of experience (PROBE) questionnaire was developed from patients and for patients. The PROBE study group invites you to participate in a multi-national, patient-focused project to investigate and directly probe patient perspectives on outcomes that affect your own life and care.
myPROBE allows you to:
* Quickly complete the PROBE questionnaire, offline or online
* Create a user to link questionnaires that you completed at different time points
* Receive notifications when it’s time to repeat the questionnaire
* Complete the questionnaire as a guest (no login required)
* Save an incomplete questionnaire and come back to it later
* If you live in Canada, simply login using your MyCBDR account
- Apple App Store
- 免費版
- 健康與健身
商店排名
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THE FIRST AND ONLY APP designed to support your experience with HEMOPHILIA B AND GENE THERAPY
Assess your current treatment and its impact on your life by tracking bleeds, factor IX activity, and how you’re feeling.
Learn every step of the gene therapy journey from eligibility to dosing to monitoring, to determine if it could be right for you.
Maximize your time and discussion quality with your doctor by using the journal feature.
Get valuable resources, reminders, and support personalized to your needs to enhance your experience managing hemophilia B.
B SUPPORT app is not intended for curing, treating, or diagnosing a specific disease, disorder, or any specific health condition. Talk to your Doctor when seeking medical advice.
- Apple App Store
- 免費版
- 醫療
商店排名
- -
myPROBE VS. 
B SUPPORT12月 31, 2024