My Healthy Maryland vs. ENGAGE-HF Utilizzo e statistiche
My Healthy Maryland Precision Health Initiative is a long-term research study. It will create a diverse “biobank” of health data and samples that can be used for research to understand how genes and other factors affect health and disease. Results from this study will lead to better ways to individualize or “personalize” healthcare (called “Precision Health”).
WHY SHOULD I JOIN?
By joining the My Healthy Maryland Precision Health Initiative, you help advance medical research and the wellbeing of society. The research may lead to improved healthcare that brings new hope for people with different conditions or diseases, including ones that are common in your community. You may learn about your health, which could lead to a better quality of life for yourself and your family members.
WHO CAN JOIN?
- Any person aged 18 or older who currently lives in Maryland.
- Anyone who can consent for themselves in English.
- Persons who are incarcerated cannot join the study at this time.
WHO CAN USE MY INFORMATION AND SAMPLES?
The My Healthy Maryland Precision Health Initiative Team can use your samples and data for research. Other approved researchers from the University of Maryland and from outside of the University of Maryland can ask to use your data and samples. Each request will first be evaluated by the My Healthy Maryland Precision Health Initiative Advisory Committee. All research requests must further be approved by an Institutional Review Board (IRB). An IRB is a special committee that protects the rights and welfare of research participants. We will protect your privacy and secret information when we share your samples or data. Your name or other identifiers will NEVER be shared with anyone outside of the My Healthy Maryland Precision Health Initiative Team.
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Discover a healthier future together! Join the My Healthy Maryland Precision Health Initiative today.
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Disclaimer: This app is only for participants in the ENGAGE-HF research study.Disclaimer: This app is only for participants in the ENGAGE-HF research study.
Welcome to ENGAGE-HF, your personalized heart health companion! Developed by Stanford University using the Stanford Spezi framework in collaboration with the DOT HF network, funded by the American Heart Association Health Tech SFRN, this app is designed to make managing heart failure easier and more effective.
With ENGAGE-HF, you have the power to optimize your heart failure treatment plan and improve your overall well-being. Our app simplifies the process of getting the best combination of medicines to help you live longer and healthier. By tracking your vitals and health status over time, you'll be more engaged in your heart failure care, allowing for personalized interventions and better health outcomes.
Your heart health journey begins with the main dashboard, where you'll find daily check-ins and two-week check-ins, closely monitoring your heart health. During your daily check-in, you'll provide vital health status information, and the app will help you track your medication adherence, giving you valuable insights into your progress.
We encourage active participation in your heart health management, and to motivate you further, ENGAGE-HF features an engagement score. By completing app activities, like answering daily health status questions, reporting medication adherence, and checking vitals, you'll increase your score, empowering you to stay on track.
Inside the app, you'll discover three main pages: Vitals, Health Status, and Medication. The Vitals page lets you view your blood pressure, heart rate, and weight measurements. On the Health Status page, we utilize the Kansas City Cardiomyopathy Questionnaire-12 (KCCQ-12), the dizziness questionnaire, and the daily health status question, giving you a comprehensive view of your heart failure symptoms and overall well-being. The Medication page offers detailed information about your core heart failure medications.
The Health Summary feature presents a comprehensive overview of vitals, health status scores, and medications, empowering you to prepare questions for your clinicians. Easily share a PDF summary with healthcare providers or caregivers, fostering collaborative care.
The ENGAGE-HF app offers short educational videos to deepen your understanding of heart failure management. Learn about app usage, heart failure medications, and monitoring from expert insights provided by the American Heart Association and the Heart Failure Society of America.
Get ready to empower your heart health with ENGAGE-HF! Start your journey to a healthier and happier life. Download the app now and take charge of your heart failure management!
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My Healthy Maryland VS. 
ENGAGE-HF12icembre d, 2024