HEM-POWR Study vs. B SUPPORT Utilizzo e statistiche

HEM-POWR App is intended solely for the participants in the HEM-POWR study in the United States: Observational Study Evaluating Effectiveness and Safety of Real-World Treatment with Damoctocog alfa pegol in Previously Treated Patients with Hemophilia A. The purpose of the app is to help participants to answer the electronic Patient-Reported Outcomes Questionnaires which are part of your participation in the HEM-POWR study. Utilizing Microhealth and HEM-POWR apps is absolutely voluntary and your decision to use or not use it will neither affect your participation in the HEM-POWR study nor the standard medical care for you / your child. This tool includes electronic reminders concerning Patient-Reported Outcomes Questionnaires, a personal and password-protected database for entry, and features to permit those involved in the HEM-POWR study to get relevant reports FOR NON-EMERGENCY REASONS ONLY. If you think you may have a medical emergency, call your doctor or 911 immediately. MicroHealth and HEM-POWR do not recommend or endorse any specific products, physicians, procedures, opinions, or other information that may be mentioned on them.
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THE FIRST AND ONLY APP designed to support your experience with HEMOPHILIA B AND GENE THERAPY Assess your current treatment and its impact on your life by tracking bleeds, factor IX activity, and how you’re feeling. Learn every step of the gene therapy journey from eligibility to dosing to monitoring, to determine if it could be right for you. Maximize your time and discussion quality with your doctor by using the journal feature. Get valuable resources, reminders, and support personalized to your needs to enhance your experience managing hemophilia B. B SUPPORT app is not intended for curing, treating, or diagnosing a specific disease, disorder, or any specific health condition. Talk to your Doctor when seeking medical advice.
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  • Settore Medico

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HEM-POWR Study VS.
B SUPPORT

19icembre d, 2024